Since her diagnosis, and her being on the heart medication, we have not experienced any additional episodes of her heart going into SVT. We have had follow-ups with the Children’s Hospital Cardiology team about every 3 or 4 months and are thankful for Dr. Robinson taking good care of our baby girl as well as educating and comforting us through this new diagnosis. At these appointments she gets routine EKGs as well as has to wear a heart monitor for twenty-four hours a few days before to get a good picture of the heart’s activity. We will continue to monitor her, and she will continue to have a few more EKGs to ensure things keep going well. 

Recently, we had a follow-up with Dr. Robinson where we discussed discontinuing the medication. Since she hasn’t had any issues for several months, we were looking forward to being able to try this. She was ten months old at this time, and we were hopeful we had given her heart enough time to finish developing. We keep wearing her Owlet sock at night and we keep praying that she remains healthy. 

From this whole story, there really has been one clear take away through it all. That is, we have so much to be thankful for and I can’t begin to state how blessed we feel to be able to watch our baby grow up. Any parent that experiences any health issues with their children can be difficult and anxiety inducing. 

On top of that, we are thankful for our families that are supporting us in any way they can. I am thankful for my medical background to be able to understand what’s going on just a little bit more, and above all I am thankful for my husband, who stepped up when I wasn’t able to, stood by me when I needed his strength, and was there every step of the way. 

I hope I don’t have to write a part 4, and that this is the end of the story about SVT. Thank you for staying tuned. Allowing me to share these stories helps me to reflect on our journey this year, showing me all I have to be grateful for.